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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Michigan Alzheimer's Disease Center Resource Report Resource Website |
Michigan Alzheimer's Disease Center (RRID:SCR_008773) | MADC | disease-related portal, topical portal, data or information resource, portal | An Alzheimer's disease center which aims to conduct and promote research on Alzheimer's disease and enhance public and professional understanding of dementia through education and outreach efforts. The MADC promotes clinical research on memory and aging which involves the direct use of research volunteers, biomarkers, and other clinical data collected through the University of Michigan Memory and Aging Project. | alzheimer's disease, biomarker, clinical, dementia, neurodegenerative disease, clinical study |
has parent organization: University of Michigan Medical School; Michigan; USA is parent organization of: Michigan Alzheimer's Disease Center Brain Bank |
Aging | Private funds | Public, Investigators wishing to utilize the research volunteer database must complete the Clinical Resource Application | nlx_144106 | http://www.med.umich.edu/alzheimers/index.html | SCR_008773 | Michigan Alzheimer's Disease Center, University of Michigan Health System Alzheimer's Disease Center | 2026-02-15 09:19:55 | 0 | ||||
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HBP: Healthy Brain Project Resource Report Resource Website |
HBP: Healthy Brain Project (RRID:SCR_013137) | HBP | portal, research forum portal, data or information resource, topical portal, disease-related portal | Research forum portal to address brain status by acquiring comprehensive, multimodal data from healthy humans across the lifespan to characterize brain status, assess its change over time, and associate composite descriptors of brain status. Specifically, the measurements are acquired noninvasively by existing neuroimaging technologies (structural MRI, functional MRI, magnetic resonance spectroscopy, diffusion MRI, and magnetoencephalography); in addition, genetic, cognitive, language, and lifestyle data are acquired. Goals: * Derive the Brain Health Index- An integrative assessment of brain status derived from multimodal measurements of brain structure, function, and chemistry. * Continue acquiring data to construct the first-ever databank on brain, cognitive, language and genetic measurements for healthy people across the lifespan. * Provide a novel and unique dataset by which to: characterize brain status, assess its change over time, and associate it with genetic makeup, cognitive function, and language abilities. * Forecast future brain health and disease based on current measurements and guide physicians towards new interventions and evaluate interventions as they develop. * Extend to siblings and other family members to further assess the genetic influences and inheritability. | cognition, language, genetic, cognitive, brain, structure, function, longitudinal, multimodal, neuroimaging, adult human, late adult human, neurological exam, neuropsychological exam, cognitive assessment, structured interview, questionnaire, mental health status, structural mri, fmri, mr spectroscopy, diffusion mri, meg, dna, genetic assessment, montreal cognitive assessment, 3ms, mmse, language assessment, lifestyle, controlled oral word association test | has parent organization: University of Minnesota Twin Cities; Minnesota; USA | Aging, Healthy | nlx_153925 | SCR_013137 | Healthy Brain Project, Minnesota Women Healthy Brain Project, Women Healthy Brain Project, Minnesota Healthy Brain Project | 2026-02-15 09:20:24 | 0 | |||||||
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ShARM Resource Report Resource Website 1+ mentions |
ShARM (RRID:SCR_003120) | ShARM | material resource, tissue bank, biomaterial supply resource | A not for profit organization to accelerate research into aging by sharing resources: providing access to cost and time effective, aged murine tissue through a biorepository and database of live ageing colonies, as well as promoting the networking of researchers and dissemination of knowledge through its online collaborative environment; MiCEPACE. ShARM will provide valuable resources for the scientific community while helping to reduce the number of animals used in vital research into aging. The biobank of tissue and networking facility will enable scientists to access shared research material and data. By making use of collective resources, the number of individual animals required in research experiments can be minimized. The project also has the added value of helping to reduce the costs of research by connecting scientists, pooling resource and combining knowledge. ShARM works in partnership with MRC Harwell and the Centre for Intergrated Research into Musculoskeletal Ageing (CIMA). | data sharing, female, male, gut, heart, kidney, livers, lung, mammary fat, muscle, pancreas, bat, bladder, bone, brain, femur, skin, spleen, thymus, tibia, wat, aged tissue, aged mouse, murine model | is listed by: One Mind Biospecimen Bank Listing | Aging, Control, Young control | Wellcome Trust | PMID:24085518 | Free, Freely available | nlx_156767 | SCR_003120 | Shard Ageing Research Models | 2026-02-15 09:18:27 | 4 | ||||
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Stein Institute for Research on Aging Video Archive Resource Report Resource Website 1+ mentions |
Stein Institute for Research on Aging Video Archive (RRID:SCR_003761) | Stein Institute Videos | video resource, data or information resource, narrative resource, podcast | Videos and podcasts presenting the latest innovative research being conducted by the Stein Institute for Research on Aging medical faculty, with the aim of promoting healthy aging. Additionally, many of the public lectures from the Public Lecture Series are also available on UCSD-TV's website video on demand programming. The Lecture series allows affiliated faculty members of the Stein Institute for Research on Aging and other scientists from the UCSD School of Medicine, as well as individuals from surrounding academic and research institutions, to present the latest findings in their respective fields of expertise and share their present work with the general community. All of these lectures focus on topics related to healthy aging or age-related diseases. | late adult human |
uses: UCSD-TV has parent organization: Stein Institute for Research on Aging |
Aging, Healthy aging, Age-related disease | Public, Commercial license | nlx_157990 | SCR_003761 | 2026-02-15 09:18:34 | 1 | |||||||
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Stein Institute for Research on Aging Resource Report Resource Website |
Stein Institute for Research on Aging (RRID:SCR_003759) | Stein Institute | training resource, topical portal, data or information resource, portal | Portal dedicated to the development and application of the latest advances in biomedical and behavioral science knowledge to issues of successful, healthy aging and the prevention and reduction of the burden of disability and disease in late life. Additionally, they provide numerous grants to junior faculty, as well as education programs for doctors and researchers through monthly Grand Rounds. From studying memory to identifying genes with important roles in aging, Stein Institute scientists are continuously pushing the boundaries of knowledge. One of their most promising ongoing projects is the Successful AGing Evaluation (SAGE) Study. SAGE is the only large-scale study on successful aging that considers the impact of positive psychological traits, such as resilience and wisdom, in addition to biological factors, providing a much more complete picture of older adults. Their monthly public lectures presented by renowned physicians and scientists are broadcast on UCSD-TV and have been viewed more than one billion times. This year they partnered with the Clinical and Translational Research Institute and the Osher Lifelong Learning Institute to organize Making Sense of Science, a course for older adults interested in science and health. In addition, They distribute a free monthly newsletter and work extensively with the community, participating in numerous events and conferences. | neuroscience, lecture, article, funding resource, late adult human |
has parent organization: University of California San Diego School of Medicine; California; USA is parent organization of: Stein Institute for Research on Aging News is parent organization of: Stein Institute for Research on Aging Video Archive |
Aging, Healthy aging | Public | nlx_157988 | SCR_003759 | UCSD Stein Institute for Research on Aging, Sam and Rose Stein Institute for Research on Aging, Center for Healthy Aging Stein Institute for Research on Aging | 2026-02-15 09:18:34 | 0 | ||||||
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Cohorts for Heart and Aging Research in Genomic Epidemiology Resource Report Resource Website 10+ mentions |
Cohorts for Heart and Aging Research in Genomic Epidemiology (RRID:SCR_004034) | CHARGE Consortium, CHARGE | organization portal, portal, consortium, data or information resource, bibliography | Consortium formed to facilitate genome-wide association study meta-analyses and replication opportunities among multiple large and well-phenotyped longitudinal cohort studies. A bibliography of CHARGE publications is available. Its founding member cohorts include: * Age, Gene, Environment, Susceptibility Study -- Reykjavik * Atherosclerosis Risk in Communities Study * Cardiovascular Health Study * Framingham Heart Study * Rotterdam Study Additional core cohorts include: * Coronary Artery Risk Development in Young Adults * Family Heart Study * Health, Aging, and Body Composition Study * Jackson Heart Study * Multi-Ethnic Study of Atherosclerosis | genome-wide association study, genomic, epidemiology, phenotype, longitudinal | is related to: International Genomics of Alzheimers Project | Aging, Heart disease | PMID:20031568 | nlx_158460 | SCR_004034 | 2026-02-15 09:18:37 | 17 | |||||||
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Mind Research Network - COINS Resource Report Resource Website 10+ mentions |
Mind Research Network - COINS (RRID:SCR_000805) | COINS | data set, service resource, storage service resource, data repository, data or information resource | A web-based neuroimaging and neuropsychology software suite that offers versatile, automatable data upload/import/entry options, rapid and secure sharing of data among PIs, querying and export all data, real-time reporting, and HIPAA and IRB compliant study-management tools suitable to large institutions as well as smaller scale neuroscience and neuropsychology researchers. COINS manages over over 400 studies, more than 265,000 clinical neuropsychological assessments, and 26,000 MRI, EEG, and MEG scan sessions collected from 18,000 participants at over ten institutions on topics related to the brain and behavior. As neuroimaging research continues to grow, dynamic neuroinformatics systems are necessary to store, retrieve, mine and share the massive amounts of data. The Collaborative Informatics and Neuroimaging Suite (COINS) has been created to facilitate communication and cultivate a data community. This tool suite offers versatile data upload/import/entry options, rapid and secure sharing of data among PIs, querying of data types and assessments, real-time reporting, and study-management tools suitable to large institutions as well as smaller scale researchers. It manages studies and their data at the Mind Research Network, the Nathan Kline Institute, University of Colorado Boulder, the Olin Neuropsychiatry Research Center (at) Hartford Hospital, and others. COINS is dynamic and evolves as the neuroimaging field grows. COINS consists of the following collaboration-centric tools: * Subject and Study Management: MICIS (Medical Imaging Computer Information System) is a centralized PostgreSQL-based web application that implements best practices for participant enrollment and management. Research site administrators can easily create and manage studies, as well as generate reports useful for reporting to funding agencies. * Scan Data Collection: An automated DICOM receiver collects, archives, and imports imaging data into the file system and COINS, requiring no user intervention. The database also offers scan annotation and behavioral data management, radiology review event reports, and scan time billing. * Assessment Data Collection: Clinical data gathered from interviews, questionnaires, and neuropsychological tests are entered into COINS through the web application called Assessment Manager (ASMT). ASMT's intuitive design allows users to start data collection with little or no training. ASMT offers several options for data collection/entry: dual data entry, for paper assessments, the Participant Portal, an online tool that allows subjects to fill out questionnaires, and Tablet entry, an offline data entry tool. * Data Sharing: De-identified neuroimaging datasets with associated clinical-data, cognitive-data, and associated meta-data are available through the COINS Data Exchange tool. The Data Exchange is an interface that allows investigators to request and share data. It also tracks data requests and keeps an inventory of data that has already been shared between users. Once requests for data have been approved, investigators can download the data directly from COINS. | mri, fmri, neuropsychological assessment, neuroimaging, diffusion tensor imaging assay, magnetic resonance imaging assay, functional mri assay, diffusion magnetic resonance imaging, magnetoencephalography, electroencephalography, brain, behavior, data sharing, data management, clinical, computed tomography, magnetic resonance, single photon emission computed tomography, positron emission tomography, clinical assessment clinical neuroinformatics, image collection, mri 2d image, database application |
is used by: Consortium for Reliability and Reproducibility is used by: DataLad is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is related to: NKI-RS Enhanced Sample has parent organization: Mind Research Network is parent organization of: MCIC |
Aging | NIBIB 1 R01 EB 000840; NIBIB 1 R01 EB 006841; NIBIB 1 R01 EB 005846 |
PMID:22275896 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_144067 | http://www.nitrc.org/projects/coins | SCR_000805 | Mind Research Network - Collaborative Informatics and Neuroimaging Suite, Collaborative Informatics Neuroimaging Suite, Collaborative Informatics and Neuroimaging Suite | 2026-02-15 09:17:59 | 20 | |||
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Penn Alzheimer's Disease Center Resource Report Resource Website |
Penn Alzheimer's Disease Center (RRID:SCR_004444) | disease-related portal, topical portal, data or information resource, portal | A national Alzhiemer's disease research center funded by the National Institute on Aging, and the research arm of the Penn Memory Center. | alzheimer's disease, memory, dementia, late adult human, disease related portal |
has parent organization: University of Pennsylvania Center for Neurodegenerative Disease Research is parent organization of: University of Pennslyvania Brain Bank |
Alzheimer's disease, Dementia, Aging | National Institute on Aging | nlx_144494 | http://www.med.upenn.edu/cndr/pennsalzheimers.shtml | SCR_004444 | Penn Alzheimer's Disease Center, Penn ADC, University of Pennsylvania Alzheimer's Disease Center | 2026-02-15 09:18:43 | 0 | ||||||
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neuromice Resource Report Resource Website |
neuromice (RRID:SCR_002993) | neuromice | organism supplier, material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on January 08, 2013. A consortium of three facilities whose purpose is to establish, characterize, and distribute novel mutant mouse models with neural and/or behavioral phenotypes, and distribute them to the worldwide research community. Interested scientists are able to obtain information about mouse lines at all three sites in a single unified database. GOALS * Increase genomic and genetic tools for functional gene identification * Provide mice with mutations that alter the nervous system or behavior * Build collaborations between geneticists and neuroscientists The consortium is made up of three mutagenesis and phenotypic screening facilities, focused on identifying alterations in nervous system function and behavior, and established by NIH. They are the Neurogenomics Project at Northwestern University, the Neuroscience Mutagenesis Facility at The Jackson Laboratory, and the Neuromutagenesis Project of the Tennessee Mouse Genome Consortium. The NIH Neurogenomics Project at Northwestern University is directed by Dr. Joseph S. Takahashi, who also acts as the Director of the Neuromice.org consortium. Chemical mutagenesis is used to induce mutations throughout the genome and combined with phenotypic screens to detect mice with mutations. In order to maximize the genomic coverage and recover both dominant and recessive mutations, a dominant G1 screen and a recessive G3 screen are utilized. Phenotypic screens focus on five primary domains: learning and memory, behavioral responses to stress, responses to psychostimulants, circadian rhythmicity, and vision. The Neuroscience Mutagenesis Facility at the Jackson Laboratory is directed by Dr. Wayne N. Frankel. The Neuroscience Mutagenesis Facility is using a three-generation backcross breeding scheme to produce homozygous mutants and will thus recover dominant, semidominant, and recessive mutations. In addition, some mutagenesis will be done in ES cells followed by two generations of breeding. Phenotypic screens focus on identifying mutations affecting: motor function, seizure threshold, hearing, vision, and neurodevelopment. The Neuromutagenesis Project of the Tennessee Mouse Genome Consortium (TMGC) involves researchers throughout the state of Tennessee, under the direction of Dr. Daniel Goldowitz, Ph.D., at the University of Tennessee Health Science Center, Memphis. TMGC also includes researchers at Oak Ridge National Laboratory, Vanderbilt University, Meharry Medical College, University of Tennessee-Knoxville, St. Jude Children's Research Hospital, and the University of Memphis. The Project is using regional mutagenesis, covering regions on chromosomes 10, 14, 15, 19, and X, thus including approximately 15 of the genome in the screened region. Phenotypic screens include: motor and sensory function, learning and memory, neurohistology, aging, alcohol response, abused drug response, visual function, and social behavior. Neuromice.org has stopped taking orders online but mutants are orderable please contact the originating center for availability and pricing details. Live targeted mutant Fragile X model mice are now available for distribution. | eye, fragile x syndrome, gene expression phenotype, geneticist, anxiety, ataxia, behavior, b-wave, cocaine, mus, musculoskeletal movement, mutant mouse strain, mutated variant site, mutation, nervous system, nervous system behavior, nervous system function, neuromuscular function, neuroscientist, phenotype, scotopic threshold response, substance-related disorder, tremor, visual perception, mutant, mouse model, neural phenotype, behavioral phenotype, neuron, mutagenesis, learning, memory, stress, psychostimulant, circadian rhythm, vision, motor function, seizure threshold, hearing, neurodevelopment, chromosome, motor function, sensory function, neurohistology, alcohol abuse, drug abuse, visual function, social behavior |
is listed by: One Mind Biospecimen Bank Listing is related to: JAX Neuroscience Mutagenesis Facility has parent organization: Northwestern University; Illinois; USA has parent organization: JAX Neuroscience Mutagenesis Facility |
Aging | NIH Blueprint for Neuroscience Research | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00046 | http://www.neuromice.org | SCR_002993 | neuromice.org | 2026-02-15 09:18:25 | 0 | ||||
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PhysioNet Resource Report Resource Website 500+ mentions |
PhysioNet (RRID:SCR_007345) | PhysioNet | data analysis service, database, service resource, storage service resource, production service resource, data repository, data or information resource, analysis service resource | Collection of dissemination and exchange recorded biomedical signals and open-source software for analyzing them. Provides facilities for cooperative analysis of data and evaluation of proposed new algorithm. Providies free electronic access to PhysioBank data and PhysioToolkit software. Offers service and training via on-line tutorials to assist users at entry and more advanced levels. In cooperation with annual Computing in Cardiology conference, PhysioNet hosts series of challenges, in which researchers and students address unsolved problems of clinical or basic scientific interest using data and software provided by PhysioNet. All data included in PhysioBank, and all software included in PhysioToolkit, are carefully reviewed. Researchers are further invited to contribute data and software for review and possible inclusion in PhysioBank and PhysioToolkit. Please review guidelines before submitting material. | physiologic, physiology, signal, software, research, biomedical, cardiopulmonary, neural, healthy, patient, cardiac, death, congestive heart failure, epilepsy, gait, disorder, sleep apnea, cardioogy, computation, physiologic signal, workspace, time series, FASEB list |
is recommended by: National Library of Medicine is recommended by: NIDDK Information Network (dkNET) is recommended by: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases is listed by: DataCite is listed by: re3data.org is listed by: FAIRsharing has parent organization: Massachusetts Institute of Technology; Massachusetts; USA; is parent organization of: CHB-MIT Scalp EEG Database is parent organization of: EEG Motor Movement/Imagery Dataset is parent organization of: Sleep-EDF Database |
Aging | NIBIB ; NIGMS |
PMID:22256277 PMID:14716615 PMID:14632011 PMID:11446213 PMID:10851218 |
Free, Freely available | r3d100011561, nif-0000-00250, DOI:10.17616/R3D06S, DOI:10.25504/FAIRsharing.bemzxg, DOI:10.13026 | https://doi.org/10.17616/R3D06S https://doi.org/10.17616/r3d06s https://doi.org/10.13026/ https://dx.doi.org/10.13026/ https://fairsharing.org/10.25504/FAIRsharing.bemzxg https://doi.org/10.17616/R3D06S |
SCR_007345 | Physionet: The Research Resource for Complex Physiologic Signals, PhysioNet, PhysioNet: The Research Resource for Complex Physiologic Signals | 2026-02-15 09:19:44 | 618 | |||
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Indonesia Family Life Survey Resource Report Resource Website 10+ mentions |
Indonesia Family Life Survey (RRID:SCR_005695) | IFLS | material resource, biomaterial supply resource | A dataset of an on-going multi-level longitudinal survey in Indonesia that collects extensive information on socio-economic and demographic characteristics of respondents, as well as extremely comprehensive interviews with local leaders about community services and facilities. The survey is ideally suited for research on topics related to important dynamic aging processes such as the transition from self-sufficiency to dependency, the decline from robust health to frailty, labor force and earning dynamics, wealth accumulation and decumulation, living arrangements and intergenerational transfers. The first wave of IFLS was fielded in 1993 and collected information on over 30,000 individuals living in 7,200 households. The sample covers 321 communities in 13 provinces in Indonesia and is representative of about 83% of the population. These households were revisited in 1997 (IFLS2), 2000 (IFLS3), and 2007-8 (IFLS4). A 25% sub-sample of households was re-interviewed in 1998 (IFLS2+). Special attention is paid to the measurement of health, including the measurement of anthropometry, blood pressure, lung capacity, a mobility test and collection of dry blood spots by a nurse or doctor. In addition to comprehensive life history data on education, work, migration, marriage and child bearing, the survey collects very detailed information on economic status of individuals and households. Links with non co-resident family members are spelled out in conjunction with information on borrowing and transfers. Information is gathered on participation in community activities and in public assistance programs. Measurement of health is a major focus of the survey. In addition to detailed information about use of private and public health services along with insurance status, respondents provide a self-reported assessment of health status. Detailed information on the local economy and prices of goods and services are also collected. These data may be matched with the individual and household-level data. Considerable attention has been placed on minimizing attrition in IFLS. In each re-survey, about 95% of households have been re-contacted. Around 10-15% of respondents have moved from the location in which they were interviewed in the previous wave. In addition, individuals who split-off from the original households have been followed. They have added around 1,000 households to the sample in 1997 and about 3,000 households in 2000. Data Availability: IFLS1 data are available through ICPSR as study number 6706. Data from subsequent waves of the IFLS can be accessed from the RAND project Website. * Dates of Study: 1993-2008 * Study Features: Longitudinal, International, Anthropometric Measures, Biomarkers * Sample Size: ** 1993: 22,000 (IFLS1) ** 1997: 33,000 (IFLS2) ** 1998: 10,000 (IFLS2+) ** 2000: 37,000 (IFLS3) ** 2008: 44,103 (IFLS4) Links: * IFLS1 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06706 * IFLS ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00184 | interview, income, education, adult, child, contraceptive, survey, consumption, asset, individual, household, anthropometry, blood pressure, lung capacity, mobility, dry blood, work, migration, marriage, child bearing, economic status, health, health service, insurance, longitudinal, international, biomarker, blood | is listed by: Inter-university Consortium for Political and Social Research (ICPSR) | Aging | NIA ; NICHD ; USAID ; Ford Foundation ; World Health Organization ; World Bank |
Public | nlx_151836 | SCR_005695 | Indonesian Family Life Survey (IFLS), Indonesian Family Life Survey, Indonesia Family Life Survey (IFLS) | 2026-02-15 09:19:10 | 35 | |||||
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HAPLOCLUSTERS Resource Report Resource Website |
HAPLOCLUSTERS (RRID:SCR_007439) | HAPLOCLUSTERS | software application, software resource | Software program designed to detect excess haplotypes sharing in datasets consisting of case and control haplotypes. Excess haplotype sharing can be seen around disease loci in case samples since LD persists longer here than in the controls where LD is persisting only according to the relatedness of the individuals in the population, i.e. the age of the population. (entry from Genetic Analysis Software) | gene, genetic, genomic, bio.tools |
is listed by: Genetic Analysis Software is listed by: bio.tools is listed by: Debian |
Aging | nlx_154014, biotools:haploclusters | https://bio.tools/haploclusters | SCR_007439 | 2026-02-15 09:19:35 | 0 | |||||||
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Aging Cell Repository Resource Report Resource Website |
Aging Cell Repository (RRID:SCR_007320) | Aging Cell Repository | material resource, biomaterial supply resource | A cell repository containing cells and DNA for studies of aging and the degenerative processes associated with it. Scientists use the highly-characterized, viable, and contaminant-free cell cultures from this collection for research on such diseases as Alzheimer's disease, progeria, Parkinson's disease, Werner syndrome, and Cockayne syndrome. The collections of the Repository include DNA and cell cultures from individuals with premature aging disorders, as well as DNA from individuals of advanced age from the the Baltimore Longitudinal Study of Aging at the Gerontology Research Center and other Longevity Collections. The Repository also includes samples from an Adolescent Study of Obesity, Apparently Healthy Controls, Animal Models of Aging, and both human and animal differentiated cell types. The cells in this resource have been collected over the past three decades using strict diagnostic criteria and banked under the highest quality standards of cell culture. Scientists can use the highly-characterized, viable, and contaminant-free cell cultures from this collection for genetic and cell biology research. | dna, cell, disorder, alzheimer's disease, progeria, parkinson's disease, werner syndrome, cockayne syndrome, aging disorder, cell repository |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Coriell Cell Repositories |
Aging, Alzheimer's disease, Progeria, Parkinson's disease, Werner syndrome, Cockayne syndrome, Obesity, Premature aging disorder, Premature aging | NIH Blueprint for Neuroscience Research ; National Institute on Aging |
Public, Researchers must apply for samples | nif-0000-00189 | SCR_007320 | NIA Aging Cell Repository | 2026-02-15 09:19:32 | 0 | |||||
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KI Biobank - CEFALO Resource Report Resource Website 1+ mentions |
KI Biobank - CEFALO (RRID:SCR_006034) | CEFALO | material resource, biomaterial supply resource | Saliva taken from participants in a study investigating the association between environmental exposures and brain tumors in children aged 7-19 years and the interaction between these risk factors and genetic polymorphisms, which may confer susceptibility to effects of exogenous agents. Sample types: * Saliva Number of sample donors: 886 (sample collection completed) | cancer, environmental exposure, environment, brain, tumor, child, adolescent, risk factor, genetics, polymorphism, gene, exogenous agent, young human |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Brain tumor, Aging | Swedish Research Council | nlx_151434 | http://ki.se/ki/jsp/polopoly.jsp?d=29332&a=24018&l=en | SCR_006034 | 2026-02-15 09:19:17 | 1 | ||||||
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Los Angeles Family and Neighborhood Survey Resource Report Resource Website 1+ mentions |
Los Angeles Family and Neighborhood Survey (RRID:SCR_008923) | L.A.FANS, LA FANS | material resource, biomaterial supply resource | A dataset of a panel study of a representative sample of all neighborhoods and households in Los Angeles County, with poor neighborhoods and families with children oversampled, for investigating the social and economic determinants of health and race and ethnic disparities. The study follows neighborhoods over time, as well as children and families. Two waves have been conducted to date, in 2000-2001 (L.A.FANS 1) and again beginning in 2006 through early 2009 (L.A. FANS 2). L.A.FANS-2 will significantly enhance the utility of the L.A.FANS data for studies of adult health disparities by: 1) Replicating self-reported health measures from L.A.FANS-1 and collecting new self-reports on treatment, health behaviors, functional limitations, quality and quantity of sleep, anxiety, health status vignettes, and changes in health status since the first interview; 2) Collecting physiological markers of disease and health status, including diabetes, hypertension, obesity, lung function, immune function, and cardiovascular disease; and 3) Expanding the data collected on adults'' work conditions, stressful experiences, and social ties. Wherever possible, L.A.FANS uses well-tested questions or sections from national surveys, such as the Health and Retirement Study (HRS), Panel Study of Income Dynamics (PSID), National Longitudinal Surveys (NLS), and National Health Interview Survey (NHIS), and other urban surveys, such as the Project on Human Development in Chicago Neighborhoods, to facilitate comparisons. Data Availability: Public use data, study design, and questionnaire content from L.A.FANS are available for downloading. Researchers can also apply for a restricted use version of the L.A.FANS-1 data that contain considerable contextual and geographically-referenced information. Application procedures are described at the project Website. L.A.FANS-2 fieldwork was completed at the end of 2008. The PIs anticipate L.A.FANS-2 public use data will be released in summer 2009. * Dates of Study: 2000-2008 * Study Features: Longitudinal, Minority Oversamples, Anthropometric Measures, Biospecimens * Sample Size: ** 2000-1: 2,548 (L.A.FANS 1) ** 2006-8: ~3,600 (L.A.FANS 2) Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00172 | child, educational achievement, education, achievement, neighborhood, adult, adolescent, los angeles, california, family, longitudinal, minority, anthropometric measure, biospecimen, policy, social, economic, health, race, ethnic disparity, treatment, health behavior, functional limitation, sleep, anxiety, health status, interview, questionnaire |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of California at Los Angeles; California; USA |
Aging | NICHD ; NIA ; NIEHS ; Office of Behavioral and Social Sciences Research ; Los Angeles County |
Public: We offer Public Use Data and four versions of Restricted Data. | nlx_151849 | SCR_008923 | Los Angeles Family and Neighborhood Survey (L.A.FANS) | 2026-02-15 09:19:36 | 1 | |||||
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Dynamics of Health Aging and Body Composition (Health ABC) Resource Report Resource Website |
Dynamics of Health Aging and Body Composition (Health ABC) (RRID:SCR_008813) | Health ABC | material resource, biomaterial supply resource | A study that characterizes the extent of change in body composition in older men and women, identifies clinical conditions accelerating these changes, and examines the health impact of these changes on strength, endurance, disability, and weight-related diseases of old age. The study population consists of 3,075 persons age 70-79 at baseline with about equal numbers of men and women. Thirty-three percent of the men are African-Americans as are 46% of the women. All persons in the study were selected to be free of disability in activities of daily living and free of functional limitation (defined as any difficulty walking a quarter of a mile or any difficulty walking up 10 steps without resting) at baseline. The core yearly examination for HEALTH ABC includes measurement of body composition by dual energy x-ray absorptio��������metry (DXA), walking ability, strength, an interview that includes self-report of limitations, a medication survey, and weight (Measurements in the Health ABC Study). Provision has been made for banking of blood specimens and extracted DNA (HealthABC repository). Study investigators are open to collaboration especially for measures focused on obesity and associated weight-related health conditions including osteoporosis, osteoarthritis, pulmonary function, cardiovascular disease, vascular disease, diabetes and glucose intolerance, and depression. The principal goals of the HEALTH ABC are: # To assess the association of baseline body weight, lean body mass, body fat, and bone mineral content, in relation to weight history, with: incident functional limitation; incidence and change in severity of weight-related health conditions; recovery of physical function after an acute event; baseline measures of strength, fitness and physical performance; gender, ethnicity and socioeconomic status # To access the contribution of episodes of severe acute illness in healthier older persons to changes in body weight, bone mineral content, lean body mass and body fat, and the relationship of these episodes to risk of functional limitation and recovery. # To assess the impact of weight-related co-morbid illness on the risk of functional limitation and recovery. # To assess the ways in which physiologic mediators of change in body composition influence and are influenced by changes in health in older adults and contribute to change in body composition; to understand how changes in body composition affect weight-related cardiovascular disease risk factors such as lipids, blood pressure and glucose tolerance. # To assess the interdependency of behavioral factors, such as nutrition and physical activity, co-morbid health conditions, and their association with change in body composition in old age. # To provide a firm scientific basis for understanding issues related to weight recommendations in old age through increased knowledge of the potential trade-offs between weight and risk of functional limitation, disability, morbidity and death; to provide information critical for developing effective strategies for the maintenance of health in older persons. | african-american, man, woman, late adult human, obesity, osteoporosis, osteoarthritis, pulmonary function, cardiovascular disease, vascular disease, diabetes, glucose intolerance, depressive disorder, dna, serum, plasma, cell, urine, platelet, blood, citrated plasma, edta plasma, red blood cell, scat-1, buffy coat, frozen, healthy, body composition |
is listed by: One Mind Biospecimen Bank Listing has parent organization: National Institute on Aging |
Late adult human, Healthy, Aging | NIA | Collaborators: Study investigators are open to collaboration especially for measures focused on obesity and associated weight-related health conditions including osteoporosis, Osteoarthritis, Pulmonary function, Cardiovascular disease, Vascular disease, Diabetes and glucose intolerance, And depression. | nlx_144412 | SCR_008813 | Dynamics of Health Aging and Body Composition, Health Aging and Body Composition (Health ABC) Study, Dynamics of Health Aging Body Composition, Health Aging and Body Composition Study, Health Aging Body Composition Study | 2026-02-15 09:19:34 | 0 | |||||
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Twin Study of Child and Adolescent Development - TCHAD Resource Report Resource Website |
Twin Study of Child and Adolescent Development - TCHAD (RRID:SCR_008897) | TCHAD | material resource, biomaterial supply resource | Data and biomaterial from a longitudinal study of 1,500 Swedish twin pairs from age 8 to age 20. Twins, parents, and teachers responded to 4 waves of questionnaires (1994, 1999, 2002, 2006) and a clinical interview. In the last follow up (2006) 1325 biological samples for DNA-extraction were collected. A paper that describes the study was published (Lichtenstein, Tuvblad, Larsson, Carlstrom, 2007, Twin Research and Human Genetics). Twins were followed prospectively from childhood to emerging adulthood. The data include a broad spectrum of measures of environments as well as internalizing and externalizing problems behaviors from different informants (twins, parents, teachers, clinical assessments). | child, adolescent, longitudinal, questionnaire, clinical interview, behavior, adhd, antisocial behavior, environment, informant, gene, comorbidity, psychopathology, eating disorder, phobia, relationship, dental status, fatty acid |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank |
Twin, Aging | Vetenskapsradet ; FAS |
nlx_151385 | http://ki.se/en/meb/twin-study-of-child-and-adolescent-development-tchad | SCR_008897 | KI Biobank - TCHAD, Twin Study of Child Adolescent Development - TCHAD, Twin Study of Child and Adolescent Development | 2026-02-15 09:19:35 | 0 | |||||
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Health and Retirement Study Resource Report Resource Website 100+ mentions |
Health and Retirement Study (RRID:SCR_008930) | HRS | material resource, biomaterial supply resource | A data set of a longitudinal panel study of health, retirement, and aging that surveys a representative sample of more than 26,000 Americans over the age of 50 every two years. The HRS explores the changes in labor force participation and the health transitions that individuals undergo toward the end of their work lives and in the years that follow. The study captures a dynamic picture of an aging America''s physical and mental health, insurance coverage, financial status, family support systems, labor market status, and retirement planning. The sample in 2006 numbered over 22,000 persons in 13,100 households, with oversamples of Hispanics, Blacks and Florida residents. Beginning in 2006, half the sample received enhanced face-to-face follow-ups that included the collection of physical measures and biomarkers HRS provides a research data base that can simultaneously support continuous cross-sectional descriptions of the US population over the age of fifty-five, longitudinal studies of a given cohort over a substantial period of time (up to 18 years by 2010 for the original HRS cohort, following them from age 51-61 to age 69-79) and research on cross-cohort trends. By 2010 the HRS will be able to support cross-cohort comparisons of trajectories of health, labor supply, or wealth accumulation for persons who entered their 50s in 1992, 1998 and 2004. The HRS also has provided the sampling frame for targeted sub-studies. The Aging, Demographics, and Memory Study (ADAMS) supplement on dementia involved a field assessment of a sample of about 930 HRS panel members aged 75+ to clinically assess their dementia status and dementia severity. Special topics including consumption and time use, prescription drug use and the impact of Medicare Part D, parents'' human capital investments in children, and diabetes management by self-reported diabetics, have appeared on mail surveys that have used the HRS as a sampling frame. The HRS also can accommodate a number of experimental topics using Internet interviewing. The HRS is also characterized by links to a rich array of administrative data, including: Employer Pension Plans; National Death Index; Social Security Administration earnings and (projected) benefits data; W-2 self-employment data; and Medicare and Medicaid files. The HRS has actively collaborated with other longitudinal studies of aging in other countries (e.g., ELSA, SHARE, MHAS), providing both scientific and technical assistance. Data Availability: All publicly available data may be downloaded after registration. Early Release data files are typically available within three months of the end of each data collection, with the Final Release following at 24 months after the close of data collection activities. Files linked with administrative data are released only as restricted data through an application process, as outlined on the HRS website. * Dates of Study: 1992-present * Study Features: Longitudinal, Minority Oversamples, Anthropometric Measures, Biospecimens * Sample Size: 22,000+ Link * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06854 | health, retirement, income, work, asset, pension plan, health insurance, disability, physical health, cognition, health care expenditure, interview, mental health, work status, retirement planning, adult, middle adult human, late adult human, questionnaire, retirement plan, family structure, demographics, housing, employment status, job history, attitude, preference, expectation, family relations, health care cost, medicaid, personal finance, social support, wealth, hispanic, african-american, minority, longitudinal, memory, consumption, time use, prescription drug use, medicare part d, diabetes management, diabetes |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Nihon University Japanese Longitudinal Study of Aging has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Dementia | U.S. Social Security Administration ; NIA U01AG009740 |
Public: Must register and conditions of Use apply. | nlx_151830 | SCR_008930 | University of Michigan Health and Retirement Study, University of Michigan Health and Retirement Study (HRS) | 2026-02-15 09:19:55 | 109 | |||||
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GERON Resource Report Resource Website 1+ mentions |
GERON (RRID:SCR_008531) | GERON | software toolkit, software resource | A suite of web-based open source software programs for clinical and genetic study. The aims of this software development in the Laboratory of Neurogenetics, NIA, NIH are * Build retrievable clinical data repository * Set up genetic data bank * Eliminate redundant data entries * Alleviate experimental error due to sample mix-up and genotyping error. * Facilitate clinical and genetic data integration. * Automate data analysis pipelines * Facilitate data mining for genetic as well as environmental factors associated with a disease * Provide an uniformed data acquisition framework, regardless the type of a given disease * Accommodate the heterogeneity of different studies * Manage data flow, storage and access * Ensure patient privacy and data confidentiality/security. The GERON suite consists of several self contained and yet extensible modules. Currently implemented modules are GERON Clinical, Genotyping, and Tracking. More modules are planned to be added into the suite, in order to keep up with the dynamics of the research field. Each module can be used separately or together with others into a seamless pipeline. With each module special attention has been given in order to remain free and open to the academic/government user., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | clinical, genotyping, tracking, genetic, module, pipeline | has parent organization: Intramural Research Program | Aging | NIA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-30610 | SCR_008531 | 2026-02-15 09:19:51 | 5 | ||||||
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KI Biobank - Parkinson Resource Report Resource Website |
KI Biobank - Parkinson (RRID:SCR_008866) | KI Biobank - Parkinson | material resource, biomaterial supply resource | The primary purpose is to assess the importance of environmental factors for Parkinson's Disease (PD) in a population-based sample of Swedish twins. In PD discordant twin pairs, what are the environmental factors that contribute to the disease in the affected twin and or protect the unaffected twin? Second, we want to investigate whether the earlier reports of low heritability for elderly male twins can be confirmed for female pairs. All twins 55 years of age and older in the Swedish Twin Registry have been screened for most complex diseases. 626 twins have screened positive for PD and most pairs are discordant. To establish diagnosis, a physician will examine all potential cases and their co-twins and their medical records will be reviewed. Environmental factors will be studied through the use of discordant pairs, where genetic susceptibility to the disease can be controlled. Environmental exposures are being secured with telephone interviews and from a questionnaire collected 30 years ago. Recent results indicate that genetic factors play a very small role. A better understanding of the etiology of PD is important for the possibility of delaying onset or even preventing the disease, as well as for providing guidance for molecular biology studies. Types of samples * DNA Number of sample donors: 333 (sample collection completed) | twin, environment, environmental exposure, interview, genetic factor, gene, twin study, adult, middle adult human, late adult human |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank |
Parkinson's disease, Discordant twin, Aging | NIEHS | nlx_151301 | http://ki.se/en/meb/environmental-factors-in-parkinsons-disease | SCR_008866 | Twin Study of Environmental Factors in Parkinson's Disease | 2026-02-15 09:19:58 | 0 |
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