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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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Emory ADRC Tissue and Biospecimen Banking Facility Resource Report Resource Website |
Emory ADRC Tissue and Biospecimen Banking Facility (RRID:SCR_000551) | biomaterial supply resource, tissue bank, material resource | The Alzheimer's Disease Research Center at Emery University maintains an active brain bank to facilitate the acquisition, storage, handling and distribution of well-characterized autopsy brain tissue and other materials to investigators. It contains frozen tissue and brain specimens, formalin fixed tissue, paraformaldehyde fixed tissue, and cryopreserved tissue. The ADRC also has access to tissues and samples related to other neurodegenerative diseases. It contains plasma samples, serum samples, lymphoblast cell lines, and cerebrospinal fluid. | brain bank, biomaterial supply resource, brain tissue, plasma, cerebral spinal fluid, serum, lymphoblast cell line, buffy coat isolate, buffy coat, frozen, paraffin block, paraformaldehyde-fixed, cryopreserved, alzheimer's disease, parkinson's disease, neurodegenerative disease, tauopathy, huntington's disease, normal control |
is listed by: One Mind Biospecimen Bank Listing is affiliated with: Emory Alzheimer's Disease Research Center is related to: Emory Neurology Database has parent organization: Emory University School of Medicine; Atlanta; Georgia; USA |
Alzheimer's disease, Parkinson's disease, Neurodegenerative disease, Tauopathy, Huntington's disease, Creutzfeldt-Jakob Syndrome, Dementia, Movement disorder, Sleep disorder, Stroke, Neuromuscular disease, Nervous system disease, Amyotrophic Lateral Sclerosis, Restless Leg Syndrome | NINDS P30 NS055077 | Public, Investigators must notify the ADRC of data use, Investigators must send a final copy of any accepted manuscript that used data or recruited research participations from the ADRC, Grant acknowledgement required, Institution acknowledgement required | nlx_144036 | SCR_000551 | Emory Tissue and Biospecimen Banking Facilities, Emory Tissue & Biospecimen Banking Facility, Emory ADRC Tissue & Biospecimen Banking Facility | 2026-02-14 02:06:00 | 0 | ||||||
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Standardized Mini-Mental State Examination Resource Report Resource Website |
Standardized Mini-Mental State Examination (RRID:SCR_003703) | SMMSE | material resource, assessment test provider | Assessment test imposing strict guidelines for administration and scoring to improve the reliability of the Mini-Mental State Examination (MMSE), a screening test for the purpose of evaluating cognitive impairment in older adults. | cognitive function, late adult human, standardized | is related to: Mini-Mental State Examination | Dementia, Depressive Disorder, Alzheimer''''s disease, Vascular dementia, Dementia with Lewy bodies | PMID:11723596 | nlx_157856 | SCR_003703 | Standardised Mini-Mental Examination, Standardized Mini-Mental State Examination (SMMSE) | 2026-02-14 02:06:46 | 0 | ||||||
|
Informant Questionnaire on Cognitive Decline in the Elderly Resource Report Resource Website 1+ mentions |
Informant Questionnaire on Cognitive Decline in the Elderly (RRID:SCR_003680) | IQCODE | material resource, assessment test provider | Assessment questionnaire used as a screening test for dementia that is filled out by a relative or other supporter who knows the patient for a minimum of 10 years to determine whether that person has declined in cognitive functioning. It lists 26 everyday situations where a person has to use their memory or intelligence. The questions on the test compare the patient''s state of mind to 10 years ago using the scale of: Much Improved A Bit Improved Not Much Change A Bit Change A Bit Worse and Much Worse. If the person is found to have significant cognitive decline, then this needs to be followed up with a medical examination to determine whether dementia is present. Scoring: * 0-3 No Cognitive Impairment * >3 Cognitive Impairment | late adult human, cognitive functioning, questionnaire, cognitive |
has parent organization: Australian National University; Acton; Australia has parent organization: Alzheimers Association |
Cognitive Impairment, Dementia | Free, Author appreciates being kept informed of research projects which make use of it | nlx_157833 | SCR_003680 | Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) | 2026-02-14 02:06:57 | 1 | ||||||
|
Seattle Longitudinal Study Resource Report Resource Website |
Seattle Longitudinal Study (RRID:SCR_003654) | SLS | data or information resource, data set | Data set from an ongoing, longitudinal-sequential study of adult-cognitive development, which began in 1956, that focuses on individual differences in age-related changes and differences across cohorts. The general purpose of the study is to examine the changes in intelligence and various abilities throughout adulthood. The data provide a normative base to determine the ages of detectable decrements in ability and the magnitudes of the decrements. The study also seeks to examine patterns of generational differences and age-related differences and to determine the effects of educational intervention on intellectual decline. This study is a mixed cross-sectional, longitudinal, and time-lag design. Included are family studies of cognitive similarity, prospective studies of early signs of dementia via psychological and genetic markers, as well as the investigation of personality and demographic variables that affect cognitive change in adults from young adulthood to advanced old age. Questionnaire topics include health behavior, behavioral rigidity, family environment, Life Complexity Inventory, CES-D Depression, and cognitive and neuropsychology batteries. Group Health Cooperative of Puget Sound Medical Records and Pharmacy Records. * Dates of Study: 1956-Present * Study Features: Longitudinal * Sample Size: 6,000+ | late adult human, blood pressure, cognition, cohort study, exercise, female, leisure activity, likelihood function, linear model, male, memory, middle adult human, multivariate analysis, professional autonomy, risk factor, washington, longitudinal, psychological development, personality, demographic, cognitive ability, cognitive functioning, cognitive impairment, cognitive processes, intelligence, questionnaire, health behavior, behavioral rigidity, family environment, life complexity inventory, ces-d depression, cognitive battery, neuropsychology battery, behavior |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Pennsylvania State University |
Aging, Dementia, Cognition disorder | NIA | PMID:19606423 | Must consult data owners directly | nlx_157807 | http://geron.psu.edu/sls/ | SCR_003654 | Seattle Longitudinal Study (SLS) of Adult Cognitive Development, Seattle Longitudinal Study of Adult Cognitive Development | 2026-02-14 02:07:21 | 0 | |||
|
Video Journal of Dementias Resource Report Resource Website |
Video Journal of Dementias (RRID:SCR_018382) | VJDementia | data or information resource, video resource | Open access online video resource about dementia for researchers dedicated to bringing latest news and education in short form video format. Published by Oxford based Magdalen Medical Publishing. | Video, dementia, Magdalene Medical Publishing | Alzheimer, dementia, Parkinson | Restricted | SCR_018382 | 2026-02-14 02:06:55 | 0 | |||||||||
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KI Biobank - HARMONY Resource Report Resource Website 1+ mentions |
KI Biobank - HARMONY (RRID:SCR_008884) | HARMONY | biomaterial supply resource, material resource | A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) | interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry is related to: KI Biobank - SATSA has parent organization: Karolisnka Biobank |
Dementia, Alzheimer''''s disease, Discordant twin, Aging | NIH | nlx_151298 | http://ki.se/en/meb/dementia-in-swedish-twins-harmony | SCR_008884 | Dementia in Swedish Twins (HARMONY) | 2026-02-14 02:06:55 | 2 | |||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-02-14 02:06:55 | 0 | |||||
|
Aging Dementia and Traumatic Brain Injury Study Resource Report Resource Website 10+ mentions |
Aging Dementia and Traumatic Brain Injury Study (RRID:SCR_014554) | data or information resource, data set | The Aging, Dementia and Traumatic Brain Injury Study is a detailed neuropathologic, molecular and transcriptomic characterization of brains of control and TBI exposure cases from a unique aged population-based cohort from the Adult Changes in Thought (ACT) study. The study contains six data sets: histology and immunohistochemistry, in situ hybridization, rna-seq, protein quantification by luminex, isoprostane quantification, and specimen metadata. | aging, dementia, traumatic brain injury, study, data set, histology, immunohistochemistry, in situ, hybridization, rna seq, protein quantification, isoprostane quantification, specimen, metadata, human |
has parent organization: Allen Institute for Brain Science has parent organization: University of Washington; Seattle; USA |
Aging, Dementia, Traumatic brain injury | Paul G. Allen Family Foundation | Available to the research community | SCR_014554 | Aging Dementia and TBI Study | 2026-02-14 02:07:56 | 23 |
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