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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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World Health Organization: The Global Health Library Resource Report Resource Website 1+ mentions |
World Health Organization: The Global Health Library (RRID:SCR_000391) | data or information resource, topical portal, bibliography, portal | The Global Health Library assembles health data, readable in many languages. The GHL aims to: * point to reliable information collections and systems, in which different users and user groups (ministries of health, policy makers, health workers, information providers, patients and their families, general public) can focus on the knowledge that best meets their health information needs; * act as a facilitator enabling access to information contents produced by numerous key providers - be they commercial companies, government institutions, civil society, not-for-profit organizations, and regional or international bodies; and * strive for universality, with focus on developing countries, and will act as a resource locator for print materials essential to areas that do not have access to electronic content. | clinical, health, human, people | has parent organization: World Health Organization | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-10556 | http://www.who.int/ghl/en/ | SCR_000391 | GHL | 2026-02-16 09:45:15 | 2 | |||||||
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GIMIAS Resource Report Resource Website 1+ mentions |
GIMIAS (RRID:SCR_009545) | GIMIAS | software application, software resource | A workflow-oriented environment focused on biomedical image computing and simulation. The open source framework is extensible through plug-ins and is focused on building research and clinical software prototypes. Gimias has been used to develop clinical prototypes in the fields of cardiac imaging and simulation, angiography imaging and simulation, and neurology. | analyze, c++, clinical neuroinformatics, dicom, microsoft, magnetic resonance, nifti, platform, posix/unix-like, software, win32 (ms windows), windows, computing, simulation, visualization, processing, clinical |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: Pompeu Fabra University; Barcelona; Spain |
BSD License | nlx_155762 | http://www.nitrc.org/projects/gimias_fw | http://www.gimias.net/ | SCR_009545 | Graphical Interface for Medical Image Analysis and Simulation | 2026-02-15 09:19:45 | 6 | |||||
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Mutant Mouse Resource and Research Center - Jackson Laboratory Resource Report Resource Website 10+ mentions |
Mutant Mouse Resource and Research Center - Jackson Laboratory (RRID:SCR_016446) | MMRRC JAX, JAX MMRRC, JAX MMR | material resource, biomaterial supply resource | Center for mutant mouse research and distribution. The objectives of the JAX MMRRC are to: identify and evaluate biomedically-significant mice, import/acquire and archive mouse strains, distribute mouse strains, and operate a control program to ensure genetic stability. | mouse, mutation, clinical, research, biomedicine, genetics, gene, strain | is organization facet of: Mutant Mouse Resource and Research Center | NIH Office of the Director U42 OD010921 | SCR_016446 | JAX Mutant Mouse Resource and Research Center, Mutant Mouse Resource and Research Center - JAX, Jackson Laboratory MMRRC, Jackson Laboratory Mutant Mouse Resource and Research Center | 2026-02-15 09:21:41 | 23 | ||||||||
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Clinotator Resource Report Resource Website 1+ mentions |
Clinotator (RRID:SCR_016054) | software application, software resource | Software that performs clinical interpretation of ambiguous ClinVar annotations. This software takes batches of variants as input and queries NCBI eutilities to generate scoring metrics. | clinical, age, weight, score, metric, vcf, python, nbci, annotation, variant, scoring, bio.tools |
is listed by: bio.tools is listed by: Debian |
Free | biotools:clinotator | https://bio.tools/clinotator | SCR_016054 | clinotator.py | 2026-02-15 09:21:45 | 2 | |||||||
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The Cancer Genome Atlas Resource Report Resource Website 5000+ mentions |
The Cancer Genome Atlas (RRID:SCR_003193) | TCGA | material resource, biomaterial supply resource | Project exploring the spectrum of genomic changes involved in more than 20 types of human cancer that provides a platform for researchers to search, download, and analyze data sets generated. As a pilot project it confirmed that an atlas of changes could be created for specific cancer types. It also showed that a national network of research and technology teams working on distinct but related projects could pool the results of their efforts, create an economy of scale and develop an infrastructure for making the data publicly accessible. Its success committed resources to collect and characterize more than 20 additional tumor types. Components of the TCGA Research Network: * Biospecimen Core Resource (BCR); Tissue samples are carefully cataloged, processed, checked for quality and stored, complete with important medical information about the patient. * Genome Characterization Centers (GCCs); Several technologies will be used to analyze genomic changes involved in cancer. The genomic changes that are identified will be further studied by the Genome Sequencing Centers. * Genome Sequencing Centers (GSCs); High-throughput Genome Sequencing Centers will identify the changes in DNA sequences that are associated with specific types of cancer. * Proteome Characterization Centers (PCCs); The centers, a component of NCI's Clinical Proteomic Tumor Analysis Consortium, will ascertain and analyze the total proteomic content of a subset of TCGA samples. * Data Coordinating Center (DCC); The information that is generated by TCGA will be centrally managed at the DCC and entered into the TCGA Data Portal and Cancer Genomics Hub as it becomes available. Centralization of data facilitates data transfer between the network and the research community, and makes data analysis more efficient. The DCC manages the TCGA Data Portal. * Cancer Genomics Hub (CGHub); Lower level sequence data will be deposited into a secure repository. This database stores cancer genome sequences and alignments. * Genome Data Analysis Centers (GDACs) - Immense amounts of data from array and second-generation sequencing technologies must be integrated across thousands of samples. These centers will provide novel informatics tools to the entire research community to facilitate broader use of TCGA data. TCGA is actively developing a network of collaborators who are able to provide samples that are collected retrospectively (tissues that had already been collected and stored) or prospectively (tissues that will be collected in the future). | genome, genome sequencing, breast, central nervous system, endocrine, gastrointestinal, gynecologic, head, neck, hematologic, skin, soft tissue, thoracic, urologic, clinical, genomic characterization, analysis, tumor genome, demographic, gene expression, copy number alteration, epigenetic, dna sequence, exome, snp, methylation, mrna, mirna, FASEB list |
is used by: Mutation Annotation and Genomic Interpretation is used by: BioXpress is used by: cancerRxTissue is listed by: One Mind Biospecimen Bank Listing is related to: Cancer3D is related to: Cancer Research Data Commons is related to: CancerMIRNome has parent organization: National Cancer Institute works with: FireBrowse |
Cancer, Tumor, Normal, Breast cancer, Central Nervous System cancer, Endocrine cancer, Gastrointestinal cancer, Gynecologic cancer, Head cancer, Neck cancer, Hematologic cancer, Skin cancer, Soft tissue cancer, Thoracic cancer, Urologic cancer | NCI 261200800001E-12-0-1 | nlx_156913 | SCR_003193 | Cancer Genome Atlas | 2026-02-15 09:18:28 | 6292 | ||||||
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EBiSC Resource Report Resource Website 50+ mentions |
EBiSC (RRID:SCR_003856) | EBiSC | material resource, biomaterial supply resource | Consortium to address the increasing demand by researchers for quality-controlled, disease-relevant research grade induced Pluripotent Stem Cell (iPSC) lines, data and cell services by demonstrating an operational banking and distribution service of iPSC lines after 3 years and establishing subsequently for Europe a centralized, not-for-profit bank providing all qualified users with access to scalable, cost-efficient and customized products. The main facility will be at the Babraham Research Campus (Cambridge, UK) and will undertake cell expansion, QC and characterization. The European Cell Culture Collection (ECACC) of Public Health England (Department of Health, UK) will coordinate cell line distribution. The Fraunhofer IBMT (Saarbr��cken, Germany) will provide comprehensive operational back up. In a phased business strategy EBiSC will hot-start distribution of lines contributed by iPSC Centres in 2014, lines collected based on specified user demand, will reach full scale operations in 2016, and with extended funding will become self-sustaining as a not for profit banking operation by 2019. EBiSC will spearhead Europe in the international standardization of iPSC banking by forging collaborative links with similar endeavors in the USA and Asia. It will also provide training to encourage adoption and use of the bank. The project has up to one year after completion to disseminate intellectual property or data created by the project. | drug, induced pluripotent stem cell, data sharing, drug development, basic science, tool development, product development, induced pluripotent stem cell line, clinical |
uses: European Collection of Cell Cultures is listed by: Consortia-pedia is listed by: One Mind Biospecimen Bank Listing has parent organization: Roslin Cells works with: Cellosaurus |
Innovative Medicines Initiative 115582; EFPIA |
Public, Worldwide on a not-for-profit basis | nlx_158178 | http://www.imi.europa.eu/content/ebisc | SCR_003856 | EBiSC - European Bank for induced pluripotent Stem Cells, EBiSC Project, European Bank for induced pluripotent Stem Cells | 2026-02-15 09:18:35 | 60 | |||||
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National Mesothelioma Virtual Bank Resource Report Resource Website 1+ mentions |
National Mesothelioma Virtual Bank (RRID:SCR_003438) | NMVB | material resource, biomaterial supply resource | A virtual biospecimen registry designed to support and facilitate basic science, clinical, and translational research that will advance understanding of mesothelioma pathophysiology with the goal of expediting the discovery of preventive measures, novel therapeutic interventions, and ultimately, cures for mesothelioma. The NMVB resource is designed to provide mesothelioma tissue samples with high-quality and well-characterized multimodal annotated data to researchers. The NMVB team strongly believes that progress in translational and clinical research - in cancer as well as other disease areas - depends on the ability of researchers to access high-quality tissue that is associated with meaningful annotation. MVB database version 3.0 has been released that provides researchers real-time access to demographic, epidemiologic, pathologic, genotype, and follow-up data associated with biospecimens at no cost. Researchers interested in utilizing NMVB samples for their research may submit an application. All researchers (academic or commercial, United States or foreign) may apply for NMVB tissue specimens. NMVB currently has 966 annotated cases and 1198 biospecimens including: * Paraffin Embedded Tissue * Fresh Frozen Tissue * Blood and DNA Samples The NMVB also has developed mesothelioma tissue microarrays (TMAs) with associated multimodal data annotation. Additional TMAs will be available shortly. | epidemiologic, biospecimen, clinical, demographic, genotype, pathologic, pathophysiology, preventive, specimen, therapeutic, tissue, translational, mesothelioma, paraffin-embedded tissue, fresh frozen tissue, blood, dna, paraffin, frozen, fresh frozen, glass slide, biopsy, resected, metastatic, lymph node, mesothelioma, cancer, lung cancer, rare disease, tissue bank, asbestos, epidemiology, pathology, biospecimen management |
is listed by: One Mind Biospecimen Bank Listing is listed by: Biositemaps has parent organization: University of Pittsburgh; Pennsylvania; USA |
Mesothelioma, Metastasis | National Institute for Occupational Safety and Health | PMID:26316942 | Public, Application required | nif-0000-33179 | SCR_003438 | Mesothelioma Virtual Bank, MVB | 2026-02-15 09:18:30 | 3 | ||||
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Kings College London Infectious Diseases BioBank Resource Report Resource Website |
Kings College London Infectious Diseases BioBank (RRID:SCR_004827) | IDB | material resource, biomaterial supply resource | Centralized specimen archiving and molecular analysis facility that assists researchers wishing to undertake cohort-based projects in areas such HIV/AIDS, HCV infection or MRSA. Its aim is to make medical research easier, more efficient and faster to perform. The IDB collects valuable clinical samples from patients with infections who are attending their partner NHS-Trust clinics. Their core collections include blood samples from patients infected with human immunodeficiency virus (HIV), hepatitis B (HBV) & hepatitis C (HCV) viruses or methicillin resistant Staphylococcus aureus (MRSA). Blood samples are separated so that patients������?? DNA, plasmas (cell-free blood) and lymphocytes (white blood cells) can be frozen into a comprehensive library. Medical researchers can access complete sets of samples to answer important clinical questions, if their research project is approved by the IDB''s Management Committee. For this reason they are actively recruiting ''medically interesting'' patients who are infected with HIV, for example: those who remain well ������?? despite being infected for many years; others who are exposed to HIV but remain uninfected; others who develop AIDS very quickly; and, those who are in the process of sero-converting. | clinical, blood, dna, plasma, lymphocyte, frozen, hepatitis c, hepatitis b |
is listed by: One Mind Biospecimen Bank Listing has parent organization: King's College London; London; United Kingdom |
Infectious disease, Human immunodeficiency virus, AIDS, Hepatitis C virus, Hepatitis B virus, Methicillin resistant Staphylococcus aureus | Guy's and St Thomas Charity ; NHS ; Biomedical Research Centre |
Approval by the Management Committee required | nlx_81398 | http://www.kcl.ac.uk/schools/medicine/research/diiid/centres/pii/biobank | SCR_004827 | Infectious Diseases BioBank, King''s College London Infectious Diseases BioBank | 2026-02-15 09:18:55 | 0 | ||||
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SepNet Central Sample Bank Resource Report Resource Website |
SepNet Central Sample Bank (RRID:SCR_004543) | SepNetBiobank | material resource, biomaterial supply resource | It is the aim of the SepNet initiative to establish a central facility, essential to data and sample quality and homogeneity, that comprises a structured and easily accessible sample bank with probes of homogeneous quality originating from a well-characterized patient population enrolled in independent, innovative and internationally competitive prospective clinical sepsis trials. The SepNetBiobank is a core facility of SepNet. The object of this central sample resource is to organize and handle all relevant aspects of sampling, storage and delivery of samples in the SepNet collaboration to ensure homogeneity of the samples in terms of specimen quality and maintaining sampling standards. This will be achieved through central handling of samples collected in peripheral nationwide 17 regional centers and an additional 36 associated centers according to an agreed sampling scheme and pre-set standards for sample quality, sample handling and banking; quality assurance and all relevant parts of sample handling will be in the hands of the core unit, minimizing pre-analytical steps in the heterogeneous environment of the different regional centers. In the next few months a fully automated sample storage system will be implemented that allows handling of more than 200.000 individual aliquots expected after completion of the different ongoing and planned SepNet Trails. In the next six months a fully automated -80 degree C sample storage system will be implemented. After completion of the plannend and ongoing SepNet trials more than 59.710 expected primary samples (218.040 aliquots) will be stored in this system. This outstanding sample resource will provide the basis for scientific projects aming at improving patient care with sepsis e.g. advancement in diagnostics, risk stratification, therapy and outcome. | dna, peripheral blood, blood, serum, plasma, infectious disease, sepsis, infection, parasitic disease, disease, parasite, clinical sepsis trial, clinical, gene, gene expression, phenotype, frozen, clinical trial | is listed by: One Mind Biospecimen Bank Listing | Infectious disease, Sepsis, Infection, Parasitic disease, Disease | German Federal Ministry of Research and Education | Collaborators / Public?: The object of this central sample resource is to organize and handle all relevant aspects of sampling, Storage and delivery of samples in the SepNet collaboration to ensure homogeneity of the samples in terms of specimen quality and maintaining sampling standards. This outstanding sample resource will provide the basis for scientific projects aming at improving patient care with sepsis e.g. advancement in diagnostics, Risk stratification, Therapy and outcome. | nlx_53583 | http://www.tmf-ev.de/Arbeitsgruppen_Foren/AGBMB.aspx | SCR_004543 | Biobank Kompetenznetz Sepsis | 2026-02-15 09:18:49 | 0 | ||||
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NUgene Project Resource Report Resource Website 1+ mentions |
NUgene Project (RRID:SCR_007426) | NUgene | material resource, biomaterial supply resource | Collects and stores genetic (DNA) samples along with associated healthcare information from patients of Northwestern-affiliated hospitals and clinics. This resource is available to scientists to conduct groundbreaking genetic research. The information and blood samples provided will be used by researchers to examine the role genes play in the development and treatment of common diseases. The NUgene Project seeks to increase the understanding of genetic mechanisms underlying common diseases, assist in the development of DNA-based technology for diagnosis and treatment of disease, and aid physicians and other healthcare providers in the application of genetics to the practice of medicine. NUgene participants are recruited throughout the Northwestern-affiliated healthcare community in order to create an ethnically and medically diverse population for research. Participants must be 18 years of age or older and receive their medical care from a Northwestern-affiliated provider, regardless of health status. Consenting individuals complete all aspects of enrollment in a single meeting with a research coordinator. The enrollment process includes the donation of a single sample of blood and the completion of a self-administered questionnaire. Participants also sign a consent form during this encounter. The NUgene Project is an interdisciplinary project that relies on the expertise of individuals working in a variety of fields, including science, medicine, clinical research, statistics, epidemiology, and computational biology. NUgene''s multidisciplinary approach has spurred collaborations within Northwestern-affiliated institutions and with other outside institutions. This collaboration of ideas is the future of genetics and genomic research., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | human, clinical, gene, gene bank, genetic, genomic, translational, medicine, genetic assessment, dna, genomic research, blood, self-administered questionnaire, questionnaire |
is listed by: One Mind Biospecimen Bank Listing is related to: DOAF is related to: Human Disease Ontology has parent organization: Northwestern University; Illinois; USA |
THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00537 | SCR_007426 | 2026-02-15 09:19:35 | 6 | ||||||||
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KI Biobank - NOAK Resource Report Resource Website 1+ mentions |
KI Biobank - NOAK (RRID:SCR_006008) | NOAK | material resource, biomaterial supply resource | THIS RESOURCE IS NO LONGER IN SERVCE, documented September 2, 2016. | nitric oxide, clinical, therapy, lung disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Asthma | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151389 | SCR_006008 | 2026-02-15 09:19:07 | 1 | |||||||
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Collaborative Studies on Genetics of Alcoholism Resource Report Resource Website |
Collaborative Studies on Genetics of Alcoholism (RRID:SCR_006841) | material resource, biomaterial supply resource | Database and biorepository from a multi-site, multi-disciplinary study characterizing the familial transmission of alcoholism and related phenotypes and identifying susceptibility genes using genetic linkage. Investigators have assembled a collection of over 300 extended families densely affected by alcoholism (more than 3000 individuals), including clinical, neuropsychological, electrophysiological, biochemical, and genetic data, and established a repository of immortalized cell lines from these individuals, to serve as a permanent source of DNA for genetic studies. NIAAA has funded the Collaborative Studies on Genetics of Alcoholism (COGA) since 1989, with the goal of identifying the specific genes underlying this vulnerability. Data and biomaterials are available to qualified investigators in the broader scientific community. Recipients of data and biomaterials will be responsible for defraying the cost of their distribution. Pedigrees densely affected with alcoholism (DSM-III-R) have been ascertained at six sites (SUNY Downstate Health Sciences Center, University of Connecticut, Indiana University, Washington University, University of Iowa, and The University of California at San Diego). Diagnoses of alcohol dependence according to several diagnostic systems (e.g., DSM-III-R, Feighner, ICD-10) are made based on examination of medical records and direct assessment using the Semi-Structured Assessment for Genetics of Alcoholism (SSAGA). Nuclear and extended pedigrees containing at least two alcohol-dependent first-degree relatives in addition to an alcohol dependent proband (with all affected individuals meeting both DSM-IIIR and Feighner criteria) have been ascertained. Clinical data comprises anonymous data on family structure, age, sex, vital status, psychopathology, diagnosis, other clinically relevant information, are stored, maintained, and distributed by Washington University. Research data, consist of data on blood biochemistry and psychological test performance, which are stored, maintained, and distributed by Washington University, and brain electrophysiological data, which are stored, maintained, and distributed by SUNY. Genetic analysis data, consisting of marker genotypes, along with results of previous genetic analyses of COGA data, are stored, maintained, and distributed by Washington University. Biomaterials, consisting of lymphoblastoid cell lines and DNA from participating subjects are stored, maintained, and distributed by Rutgers University. Researchers may gain access to clinical data, research data, genetic analysis data, and biomaterials, subject to NIAAA approval, by completing an application details available from the website. After access certification, the principal investigator will be given access to electronic data files and other documentation. | electrophysiological, gene, genetic assessment, genetic linkage, alcohol dependence, alcoholism, cell line, clinical data, dna, genotype, lymphoblastoid, neuropsychological assessment, pedigree, psychological assessment, biospecimen, clinical |
is listed by: One Mind Biospecimen Bank Listing has parent organization: National Institute on Alcohol Abuse and Alcoholism |
Alcoholism, Alcohol dependence | nif-0000-24278 | SCR_006841 | COGA | 2026-02-15 09:19:36 | 0 | ||||||||
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Parkinson's Progression Markers Initiative Resource Report Resource Website 500+ mentions |
Parkinson's Progression Markers Initiative (RRID:SCR_006431) | PPMI | material resource, biomaterial supply resource | An observational longitudinal clinical study partnership to identify and validate biomarkers of Parkinson disease (PD) progression and provide easy and open web-based access to the comprehensive set of correlated clinical data and biospecimens, information, and biosamples acquired from PD and age and gender matched healthy control subjects to the research community. The data and specimens have been collected in a standardized manner under strict protocols and includes clinical (demographic, motor and non-motor, cognitive and neurobehavioral), imaging (raw and processed MRI, SPECT and DAT), and blood chemistry and hematology subject assessments and biospecimen inventories (serum, plasma, whole blood, CSF, DNA, RNA and urine). All data are de-identified to protect patient privacy. PPMI will be carried out over five years at 21 clinical sites in the United States and Europe and requires the participation of 400 Parkinson's patients and 200 control participants. The PPMI database provides researchers with access to correlated clinical and imaging data, along with annotated biospecimens, all available within an open access system that encourages data sharing (http://www.ppmi-info.org/access-data-specimens/). The website hosts an Ongoing Analysis section to keep the scientific community apprised of analyses being completed, in hopes of stimulating collaborations between researchers who are using PPMI data and specimens. | analyze, atlas data, clinical neuroinformatics, computational neuroscience, dicom, imaging genomics, loni pipeline, minc, magnetic resonance, pet, spect, dat, image collection, clinical, biological, imaging data, biomarker, imaging, demographic, motor, cognitive, neurobehavioral, hematology, consortium, biosample, sleep, longitudinal, FASEB list |
is used by: Biomarkers Across Neurodegenerative Diseases is listed by: Consortia-pedia is listed by: One Mind Biospecimen Bank Listing is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: NIH Data Sharing Repositories is related to: NIH Data Sharing Repositories has parent organization: Laboratory of Neuro Imaging has parent organization: Michael J. Fox Foundation for Parkinsons Research |
Parkinson's disease, Control | Michael J. Fox Foundation for Parkinsons Research ; consortium of industry partners ; non-profit organizations ; private individuals |
Open unspecified license, Application required | nlx_33115 | http://www.nitrc.org/projects/ppmi | SCR_006431 | Parkinson's Progression Markers Initiative | 2026-02-15 09:19:16 | 730 | ||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | material resource, biomaterial supply resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-02-15 09:19:57 | 0 | |||||
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Framingham Heart Study Resource Report Resource Website 100+ mentions |
Framingham Heart Study (RRID:SCR_008963) | FHS | material resource, biomaterial supply resource | A longitudinal, epidemiologic study to identify the common risk factors or characteristics that contribute to cardiovascular disease by following its development over a long period of time in a large group of participants who had not yet developed overt symptoms or suffered a heart attack or stroke. Since that time the FHS has studied three generations of participants resulting in biological specimens and data from nearly 15,000 participants. Since 1994, two groups from minority populations, including related individuals have been added to the FHS. FHS welcomes proposals from outside investigators for data and biospecimens. The researchers recruited 5,209 men and women between the ages of 30 and 62 from the town of Framingham, Massachusetts, and began the first round of extensive physical examinations and lifestyle interviews that they would later analyze for common patterns related to CVD development. Since 1948, the subjects have continued to return to the study every two years for a detailed medical history, physical examination, and laboratory tests, and in 1971, the Study enrolled a second generation - 5,124 of the original participants'''' adult children and their spouses - to participate in similar examinations. In 1994, the need to establish a new study reflecting a more diverse community of Framingham was recognized, and the first Omni cohort of the Framingham Heart Study was enrolled. In April 2002 the Study entered a new phase, the enrollment of a third generation of participants, the grandchildren of the Original Cohort. In 2003, a second group of Omni participants was enrolled. Over the years, careful monitoring of the Framingham Study population has led to the identification of major CVD risk factors, as well as valuable information on the effects of these factors such as blood pressure, blood triglyceride and cholesterol levels, age, gender, and psychosocial issues. Risk factors for other physiological conditions such as dementia have been and continue to be investigated. In addition, the relationships between physical traits and genetic patterns are being studied. FHS clinical and research data is stored in the dbGaP and NHLBI Repository repositories and may be accessed by application. Please check the following repositories before applying for data through FHS. Investigators seeking data that is not available through dbGaP or BioLINCC or seeking biological specimens may submit a proposal through the FHS web-based research application. The FHS data repository may be accessed through this FHS website, under the For Researchers link, then Description of Data, in order to determine if and how the desired data is stored. Proposals may involve the use of existing data, the collection of new data, either directly from participants or from previously collected samples, images, or other materials (e.g., medical records). The FHS Repository also has biological specimens available for genetic and non-genetic research proposals. Specimens include urine, blood and blood products, as well as DNA. | clinical study, longitudinal study, heart, cardiac, adult human, male, female, risk factor, blood pressure, blood triglyceride, cholesterol level, age, gender, psychosocial, dementia, physical trait, genetic trait, minority, clinical, genotype, phenotype, urine, blood, blood product, dna, FASEB list |
is listed by: One Mind Biospecimen Bank Listing is related to: NCBI database of Genotypes and Phenotypes (dbGap) is related to: Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC) has parent organization: Boston University; Massachusetts; USA |
Cardiovascular disease, Normal, Aging | NHLBI Division of Prevention and Population Sciences | Public / Collaboration preferred: FHS welcomes proposals from outside investigators. Collaboration with FHS investigators is encouraged as it helps to maximize the scientific potential of the unique data. | nlx_151991 | SCR_008963 | 2026-02-15 09:19:55 | 155 | ||||||
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Online Education for the International Research Community: AboutIntroduction to Clinical Drug and Substance Abuse Research Methods Resource Report Resource Website |
Online Education for the International Research Community: AboutIntroduction to Clinical Drug and Substance Abuse Research Methods (RRID:SCR_000802) | continuing medical education, short course, certificate program, training resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on November 07, 2012. Decemeber 15, 2011 - Thank you for your interest in DrugAbuseResearchTraining.org. The site, courses, and resources are no longer available. Please send an email to inquiry (at) md-inc.com if you would like to be notified if the site or courses become available again. Introduction to Clinical Drug and Substance Abuse Research Methods is an online training program intended to introduce clinicians and substance abuse professionals to basic clinical research methods. The program is divided into four modules. Each module covers an entire topic and includes self-assessment questions, references, and online resources: * The Neurobiology of Drug Addiction * Biostatistics for Drug and Substance Abuse Research * Evaluating Drug and Substance Abuse Programs * Designing and Managing Drug and Substance Abuse Clinical Trials The learning objectives of this program are to help you: * Evaluate the benefits of alternative investigative approaches for answering important questions in drug abuse evaluation and treatment. * Define the proper levels of measurement and appropriate statistical methods for a clinical study. * Address common problems in data collection and analysis. * Anticipate key human subjects and ethical issues that arise in drug abuse studies. * Interpret findings from the drug abuse research literature and prepare a clinical research proposal. * Prepare research findings for internal distribution or publication in the peer reviewed literature. * Recognize drug addiction as a cyclical, chronic disease. * Understand and describe the brain circuits that are affected by addicting drugs, and explain to others the effects of major classes of addicting drugs on brain neurotransmitters. * Utilize new pharmacologic treatments to manage persons with drug addiction. Physicians can earn AMA PRA Category 1 Credit and purchase a high resolution printable electronic CME certificate(view sample); non-physicians can purchase high resolution printable electronic certificate of course participation that references AMA PRA Category 1 credit (view sample). This program does not offer printed certificates. | clinical, drug, substance abuse, research, course, clinician, neurobiology, addiction, literature, disease, brain, circuit, neurotransmitter, pharmacologic, treatment, education, training | NIDA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-37940 | SCR_000802 | Neurobiology of Addiction Online Course | 2026-02-16 09:45:20 | 0 | ||||||||
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Cystic Fibrosis Mutation Database Resource Report Resource Website 10+ mentions |
Cystic Fibrosis Mutation Database (RRID:SCR_000685) | CFTR1, CFMDB | data repository, database, storage service resource, service resource, data or information resource | Collection of mutations in CFTR gene for international cystic fibrosis genetics research community. Provides up to date information about individual mutations in CFTR gene. All known CFTR mutations and sequence variants have been converted to standard nomenclature recommended by Human Genome Variation Society. On line process for submission of new mutations has been added.While they continue to ensure quality of data, they urge international community to give them feedback and suggestions. Clinical information in this database relates only to details of discovery of specific mutations. As part of 2010 upgrade, CFTR1 joined new project called CFTR2 - Clinical and Functional TRanslation of CFTR. Links to CFTR2 for many mutations in CFTR1 will provide up-to-date summaries of genotype-phenotype information from patient registries around the world. | Gene, genetic, amino acid, clinical, cystic fibrosis, mutation, phenotype, genotype-phenotype, genotype, dna sequence, mouse, sequence, genetic variation, polymorphism, translation, function, sequence variation, metadata standard, cftr2, FASEB list | is related to: CFTR2 | Cystic fibrosis | Free, Freely available | nif-0000-21105, r3d100012093 | https://doi.org/10.17616/R38356 | SCR_000685 | 2026-02-16 09:45:19 | 42 | ||||||
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NIH - Rapid Access to Interventional Development Resource Report Resource Website 1+ mentions |
NIH - Rapid Access to Interventional Development (RRID:SCR_000713) | funding resource, material service resource, analysis service resource, material analysis service, biomaterial analysis service, biomaterial manufacture, production service resource, service resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on August 14, 2025.NIH-RAID makes available at no cost to researchers and organizations certain critical resources needed for the development of new therapeutic agents. This program, part of the Translational Research component of Reengineering the Clinical Research Enterprise, uses resources of NCI's Developmental Therapeutics Program and the National Heart Lung and Blood Institutes (NHLBI) Gene Therapy Resource Program. The services provided will depend upon the stage of the project and the strength of the preliminary data. Services available include: production, bulk supply, GMP manufacturing, formulation, development of an assay suitable for pharmacokinetic testing, and animal toxicology. Assistance also will be provided in the regulatory process, through access to independent product development planning expertise. Proposals in support of animal efficacy studies or synthesis and formulation of recombinant proteins or monoclonal antibodies will not be accepted. NIH-RAID is not a grant program. Successful projects will gain access to the governments contract resources, as well as the assistance of the NIH in establishing and implementing a product development plan. Funds to support individual projects will come both from the Roadmap and from individual Institutes, with Institutes assuming the bulk of support in the specific disease areas germane to their mission. This co-sponsorship is critical because of the resource and expertise needs and because NIH-RAID cannot support the full developmental pipeline; an Institute partnership may therefore be important for subsequent translational efforts. To obtain access to NIH-RAID resources, applications must be submitted electronically through Grants.gov using SF424. Applications are initially screened to determine whether the resources requested are appropriate for this program. Then they are reviewed by the NIH Center for Scientific Research. The results of that evaluation along with supplemental information from the lead investigator will guide final Institute and Roadmap resource allocation. The services provided will depend upon the stage of the project and the strength of the preliminary data. When a lead therapeutic agent has been selected and proposed for preclinical development, the following services are available: For small molecules, natural products, peptides, oligonucleotides, and gene vectors: Synthesis, Scale-up production, Development of analytical methods, Development of suitable formulations, Isolation and purification of natural products, Pharmacokinetic/ADME studies including bioanalytical method development, Range-finding initial toxicology, IND-directed toxicology, Manufacture of clinical trial supplies, Product development planning and advice in IND preparation For recombinant proteins and monoclonal antibodies: Pharmacokinetic/ADME studies including bioanalytical method development, Range-finding initial toxicology, IND-directed toxicology, Product development planning and advice in IND preparation When a lead therapeutic agent has not yet been selected and proposed for preclinical development, the following services are available: For small molecules, natural products, peptides, oligonucleotides, and gene vectors: Synthesis, Development of analytical methods, Isolation and purification of natural products, Preliminary Pharmacokinetic/ADME studies, including bioanalytical method development, Preliminary toxicology For recombinant proteins and monoclonal antibodies, Preliminary Pharmacokinetic/ADME studies, including bioanalytical method development, Preliminary toxicology In some cases the NIH-RAID program will support only one or two key steps for preclinical development, while in other cases it may be possible to provide assistance with most of the development tasks needed to file an Investigational New Drug (IND) application to the Food and Drug Administration (FDA). When the NIH-RAID program does not provide all of the remaining services required for IND submission, it is expected that other resources will be in place to complete development steps not supported by NIH-RAID. Funding Resource,. | adme, applied, biomaterial method development, clinical, pharmacology, student, toxicology | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-00543 | http://nihroadmap.nih.gov/raid/ | SCR_000713 | NIH-RAID | 2026-02-16 09:45:19 | 1 | ||||||||
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Jefferson Hospital for Neuroscience Alzheimers Disease and Dementia Center Resource Report Resource Website |
Jefferson Hospital for Neuroscience Alzheimers Disease and Dementia Center (RRID:SCR_000579) | Jefferson Alzheimer's Disease and Dementia Center | topical portal, patient-support portal, portal, data or information resource, disease-related portal | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 6,2023. If you or someone you love has been diagnosed with dementia caused by Alzheimer's disease, you'll be in good hands at Jefferson. Our neurologists and psychiatrists are dedicated to: Compassionate care for individuals with Alzheimer's disease; Supporting families; Advancing care through research into the epidemiology and treatment of neurodegenerative diseases. We interact with patients very early in the disease progression, when impairment is typically mild; deliver state-of-the-art care; provide information; build care-giving skills; and help caregivers connect with community support and plan for the future. | alzheimer's disease, late adult human, neurodegenerative disease, dementia, brain bank, clinical trial, clinical | has parent organization: Thomas Jefferson University; Pennsylvania; USA | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_144497 | http://www.jeffersonhospital.org/departments-and-services/alzheimers-disease-dementia-center.aspx | SCR_000579 | Jefferson Hospital for Neuroscience Alzheimers Disease Dementia Center, Jefferson Hospital for Neuroscience Alzheimer's Disease Dementia Center, Jefferson Hospital for Neuroscience Alzheimer's Disease and Dementia Center | 2026-02-16 09:45:17 | 0 | ||||||
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Vanderbilt University Medical Center Pharmacology Resource Report Resource Website |
Vanderbilt University Medical Center Pharmacology (RRID:SCR_001450) | Vanderbilt Pharmacology | data or information resource, department portal, organization portal, portal | At the Department of Pharmacology at Vanderbilt University Medical Center we engage in scientific discovery to elucidate biological mechanisms and develop novel therapeutics. We provide training focused on critical thinking to promote innovation, scholarship and integrity. To this end, we foster creativity, collegiality, and leadership. The Department is one of the most distinguished Pharmacology departments in the country and have placed in the top two NIH ranking positions for sixteen of the last twenty years. Research interests in the Department include five major areas: signal transduction, neuroscience, bioactive lipid metabolism, genetic basis of cardiovascular dysfunction, and drug metabolism. Molecules under investigation include G-protein coupled receptors (rhodopsin, adrenergic, serotonin and receptors), heterotrimeric G-proteins, ion channels, transporters and regulatory proteins such as arrestins, protein kinases and protein phosphatases. A strength in our research and training environment is that Vanderbilt University has a world-acclaimed Division of Clinical Pharmacology, which links the Department of Medicine with the Department of Pharmacology. Faculty members in the Division of Clinical Pharmacology focus on human disease and clinical enigmas as the origin of their questions for research. Basic scientists who pursue their inquiries in this environment are continually informed by their colleagues of the pathophysiological and potential therapeutic relevance that can be achieved by appropriate focus of their efforts. We have created one of the first programs in the country to answer the call from the National Institutes of Health (NIH) for more scientists trained in the area of drug discovery and development. A unique feature of the department is our outstanding Ph.D. training program. Almost 60 scientists in training are addressing important issues in fields such neuroscience, cardiovascular development, receptor signaling, and drug metabolism. Scientists in these areas are linked by a common interest in, and understanding of, the basic principles of drug action and design. This perspective makes our trainees ideally suited for a wide range of careers and our program is committed to developing leaders in academia, industry, and regulatory affairs. Postdoctoral and other positions are available. | pharmacology, clinical, signal transduction, neuroscience, bioactive lipid metabolism, cardiovascular dysfunction, drug metabolism, g-protein coupled receptor, rhodopsin, adrenergic, serotonin, receptor, heterotrimeric g-protein, ion channel, transporter, regulatory protein, arrestins, protein kinase, protein phosphatase, disease, drug discovery, drug development |
has parent organization: Vanderbilt University School of Medicine; Tennessee; USA has parent organization: Vanderbilt University Medical Center; Tennessee; USA |
Free, Freely Available | nif-0000-02295 | http://www.mc.vanderbilt.edu/vumcdept/pharm/ | SCR_001450 | Vanderbilt Department of Pharmacology | 2026-02-16 09:45:29 | 0 |
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